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Archive for May, 2008

the month of may

Here are some pictures from this past month…graduation, Mother’s Day, DC. etc.

Graham and Tina………………………………….Graham and Grandpa Seckinger

Ryan, Dad, The Graduate, me, Mom Ruthie and Nama

Mother’s Day at the nursing home visiting Mimi

Our little traveler, he makes this flying thing look fun!

Seth was determined to get Jackson’s picture in front of the weenie truck when we spotted it in DC…I told them it would make it to the blog with the caption “The Two Weenies”

Jackson is on his way to 6 teeth! He cut the second set in DC and the third set is breaking through!

Jackson playing with my cousin Johnathan and Aunt Carrol

Play dates with friends in Falls Church- Ellie and Alison, Micah and Kelley, and Abby and Rebecca (below). Jackson got and gave lots of kisses. He was more aggressive with Abby…but she held her own! Micah dominated among the boys! Ellie was just the sweet big sis to these crazy little ones!

First time in the grass with bare feet.

Hope you are all having a fun summer!

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Hanging out in DC

We had a whirlwind week before heading to DC. Jackson met his great grandparents on the Seckinger side and got to go see his other great grandmother, Mimi, on Mother’s Day at the nursing home. We also got to attend my parents farewell party as they are taking a hiatus from ministry after 30 years! Even though we didn’t plan to be in Houston during this time it was fun to coincidently get to be there for some big family events.

We are currently in DC taking care of other family medical stuff while we are back in the states. It has been fun to see friends and today we are getting to visit with my Aunt Carrol and cousin Johnathan. We return to Houston on Sat and then Seth heads back to Bogota on Tuesday afternoon. Jackson goes back to MD Anderson on Tuesday as well. It will be a relief to have all of this behind us. Our lives were kind of catapulted out of order and we are looking forward to getting back to some kind of normal..even if it’s a “new normal”.

Jackson is having the time of his life these days! Ever since we “set him free” from confinement he has been a little wild man. He is cruising holding on to the couch and doing pull-ups on the high chair. We think he might be walking by the end of the summer. The most desirable objects in the apt are the wires, plugs and doors. He is giving everyone a good workout. His Mia (grandma Kolb) was here for a few days last week and spoiled him with lots of walks and tickling. My mom came on Sat and will be here until we head back to Houston. Yesterday he got to go to the Smithsonian Museum of Natural History with his Nama (Grandma Seckinger). They had quite an adventure with Jackson’s diaper bag getting stuck under the stroller in the security line and eventually spilling it’s overflowing contents when it was finally dislodged. As you can imagine this held up a line of anxious tourists. He was also obsessed with removing his socks (this is one of his favorite pastimes). My mom got more sympathy for his cold feet than I get in Bogota. In Bogota I get lots of dirty looks for “under-dressing” him.

On another note, we are celebrating a few things these days..the first, my brother Graham graduated from Texas A&M and just started his first job. He graduated on a Friday and was working the following Monday…pretty impressive. AND our friends the Maney’s just welcomed little Jonas into their family yesterday! You can check out his pictures by clicking on their blog link!

We are missing our cord to upload pictures so we will post some pictures from graduation, etc when we return to Houston. Stay tuned.

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Drain Free

Thursday was a major milestone in this roller-coaster of a life we’ve been experiencing the last couple of weeks. We took Jackson to see the surgeon concerning how his leg was healing and if we could take the drain out yet. Kristen and I had decided we were going to do our best to convince the doctor that she should take it out. You see, they had originally told us that we could likely take it out before we even left the hospital (we left on Saturday). Then they said that if we called on Monday, we could set up an appointment to take it out, potentially that day. We called on Monday and they said we should come in on Thursday.

So, we went in on Thursday. The surgeon said that everything had healed very nicely. He didn’t seem to have any mobility issues. He could stretch and bend his leg without any pain or resistance. And he was able to stand on his leg without any problems.

Then came the drain. The doctor said she would take it out, although there was still several ccs’s of liquid coming out. We were so relieved. So she quickly yanked it out, much to Jackson’s chagrin. He let out a yelp and cried some, but I think he’s glad to not have that impediment any more. The doctor also said that he can now crawl and stand and do anything else, except for take a full-fledged bath. That’s because he still has a hole where the drain was, and that has to heal. She thought it would take around a week to scab over.

In the meantime, he has been making up for lost time. He’s crawling, wanting to stand and climb on and over anything in his way. He especially likes the Seckinger’s dog, Noah.

We will see the surgeon for the final time on the 27th, at which point we’re assuming she’ll say everything has healed perfectly, which will then allow Jackson to get his medical clearance back so he can travel to Bogota.

I’ve attached a short video we took with our camera of Jackson in a wagon, before the surgery. You can tell why he feels like a prince. It has been quite a let down for him to come home to normal life!

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Recovering

Thank you all again for your prayers and support. Continue to keep us in your prayers as we all recover from such an emotional time and continue to provide lots of care for Jackson. He came home with the drain in his leg and they told us we could come back Monday to get it removed. The weekend seemed daunting to try to care of it but with Monday in sight we thought we could handle it. When Monday rolled around they said they couldn’t get him in until Thursday afternoon. Ugh. Yesterday was the first day that we didn’t have a leakage problem….we have already had one at 5 AM this morning. We will be very excited to have it removed!! Jackson appears to be in a little more pain now and then but overall he is being so tough and is so happy.

We are enjoying time with our families and are excited to be here for my brother Graham’s graduation this Friday. Seth is going to go to an Astros game tonight and we are enjoying PLENTY of American food.

We leave for DC on Monday to take care of some other family medical stuff. We are excited to reconnect with our friends from our small group there.

That’s the scoop from here. Hope you are all well!

PS- We are anticipating the birth of the Maney and Seabourn boys! Keep us posted! Hang in there Meredith and Sarah…these last weeks will be gone before you know it!

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We are headed home in a an hour or so…not home, home but Katy home. We were hoping that Jackson would get his drain out before discharging but he still needs it so we are going to be brave and head home with it. We will return to see the surgeon at the beginning of next week sometime to have the drain removed.

We will be resting and caring for Jackson the next few days…yes, these two tasks contradict one another but we have grandparents just dying to help out.

Jackson is in more pain today but still being a good sport. He has learned to climb up and stand on the side of the crib and gets from laying flat to sitting straight up with ease. We laugh because every time he is sick he seems to push ahead with his milestones! We would love for him to take a break for a few days.

Details are still being worked out but at this point Seth will go back next week to work in Bogota for some time before probably returning again to the states. We will be here, there and everywhere for the next couple of months.

Here are a few hospital pictures for your viewing enjoyment…

This is of us before they took him for surgery.

This is of Jackson and I when he was in recovery just after we learned it was BENIGN!!!

This is Jackson when he got transfered to a room in inpatient..he was pretty groggy still. The next is of his adoring grandparents. He was not lacking attention for sure!

The next picture is of us with Dr. Huh, our wonderful oncologist who spent so much time caring for Jackson and for us along the way. And lastly, Jackson’s battle wound. It is a bit longer than you can see but this gives you an idea. He will take great pride in it, I’m sure.

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status report

We are currently in the hospital where Jackson will be for at least today. We think he will likely be here another night but we have no idea until we meet with the doctor today. He has a big drain attached to his incision and has managed to pop it off 2 times already so we are taking advantage of the assistance of nurses while they have him here! We brought his Praise Baby CD so that is helping to keep him distracted for short intervals. We’ll keep you posted but as I said last night, it will be post-op for a while…especially once we don’t have the nurses help.

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PRAISE THE LORD!!!

Well, after Jackson being a “cancer patient” and Seth and I being “parents of a cancer patient” all week and after making long term decisions we learned that….THE TUMOR IS BENIGN!!!  It turned out to be a vascular malformation.  Jackson stunned the whole medical team and the zillions of people that we have been meeting over the past few days.

Jackson went in to surgery this morning and the doctor said she would come out within an hour to tell us the results of the frozen sample.  After an hour and a half we asked if they had any results. They said that the surgeon was having to take more tissue and that she would come herself to give the results.   We sat agonizing for a few more minutes.

We got called back to a private room to talk to the surgeon and she told us the surgery had gone well. She then told us that she was shocked but that the tumor was a benign mass of vessels.

Jackson still has the same recovery because he had the same surgery as if it was cancer.  He is pretty agitated and uncomfortable but the pain meds are seeping in so he is zoning out a bit.

We will have some more time in Houston for follow-up care and he will return every 6 months for scans.  The doctor said although vascular malformations are not cancer they can reoccur and cause pain so we need to keep tabs on it. It will give us an excuse to get back to the states.
We will keep you posted over the coming days.  Like I mentioned, we will be around for follow-up care and possibly PT.  Right now we need to recuperate and take care of Jackson while he heals.

Thank you for your love and support.  Your prayers were definitely answered.  Continue to pray for rest and healing!

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